Is it a coincidence that the temp today is half what it was yesterday, it's poured all day, and my symptoms are a lot worse?
Admittedly I am on a much reduced dose of prednisolone (10mg down from 30mg). I was hoping to get further but to be honest the aches and pains that are so bad today had started giving me a little jip ever since I came down from 12.5 mg. Next step down was to have been to 7.5 but the rheumy nurse says to hold at 10 if I am having problems. So it looks as though my main med 50 mg Azathioprine may not be enough. I will see them again in a month to see what progress I have made.
I am undecided about the worst aspect of RA. For sure, a front runner has to be the incredibly long time scales for effectiveness of treatment to be assessed. I'm an RA patient that doesn't do
patient all that well.
On the bright side, I have been accepted onto my company's long term sickness scheme which means that I get a very generous 75% of my base salary and don't have to claim benefits. I count myself very lucky (although I'd prefer to be working and not have the disease.
Paul Barrett
Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)
Enthesitis (2012)
Ulcerative Colitis (1990)